January 23, 2021 | By Mieko Hester-Perez
When my son Joey entered palliative care second to his autism spectrum disorder with Duchenne Muscular Dystrophy, I had no idea I was preparing for another unexpected “life calling”. I was introduced to a prominent palliative care medical director; at the time, my initial thoughts were to seek guidance in this new phase with my son’s healthcare. I was unaware that this person was another assigned “guardian angel” for our next chapter. Ready to beat Duchenne Muscular Dystrophy the same way, I challenged autism, I was ready take on more sleepless nights searching for answers as I did in 2009 when my own conservative views on cannabis would forever change once I saw my son smile.
After receiving credentials in Brain Health, Legal & Ethical Issues in Healthcare, and Pain Assessment and Management, it gave life to a new tier of important roles for healthcare institutions and licensed dispensaries.
I had begun, supporting medical teams several years ago and their patients via HIPPA compliant confidential consults reaching well over 700 consumer navigation plans. The primary goal was to provide consumer-centered outcomes to promote healthy conversations with medical professionals.
The criteria for autism and palliative care consumers were remarkably similar especially when I scheduled consults on the same day. Here we go,
Autism symptoms: irritability, non-verbal or inability to articulate pain or discomfort, Insomnia, self-injurious, no sense of awareness and violent outburst.
Palliative care consumers: irritability, non-verbal or inability to articulate pain or discomfort, Insomnia, self-injurious, no sense of awareness and violent outburst.
Case and point, a non-verbal adult on the spectrum who cannot communicate, that they are hungry are just as irritated as an adult in palliative care yelling at a nurse to be turned over.
What is evident with both scenarios is, cannabis therapies will allow for these types of “indicators” to be managed.
Through a cannabis professional consult with sensible outcomes and expectations a practical “navigation plan” can be coordinated for consumers and their caregivers. The navigation plan should include product information along with dosing, frequency, and a record of any indication of possible side effects to help you gage your experience.
Read full blog on Hopegrown.org
March 2, 2021 | By Mieko Hester-Perez
Every morning, I start my day with a cup of coffee as I sort my emails from healthcare professionals ,social workers, attorneys, and families in need according to time zones…so basically, I wake up between 4 to 9 hours behind by default of living in California. When you are a family in need of answers, time becomes the ultimate waiting game. So, I became the parent I needed when I had to make this same choice for my child on the autism spectrum 11 years ago when he was 9 years old. The 6th sense I have made my “superpower” is “hearing” my emails, in the same tone I had when a community of cannabis pioneers answered my calls and gave me more time with my son.
Every day I pay it forward honoring my son Joey’s legacy, as I open my emails the global journey begins…
(Names have been changed to protect the family’s privacy.)
Hola Hester, recibe un saludo afectuoso y mucha admiración por los resultados que has logrado con tus hijos. Yo tengo un sobrino de 12 años autista que se llama Mario, él es muy agresivo con su madre y la hermana, las agrede constantemente.
La familia está desesperada y se les fue de las manos. El niño este super medicado pero no hay progreso, al contrario retrocedió más.
no habla bien, no mantiene la mirada, mueve los brazos, se orina en la cama de noche, es grosero, rompe todo si no le dan lo que quiere. Ya ha mandado un par de veces a la madre al hospital por los golpes que le ha dado.
Nos podrías ayudar y recomendar, que tratamiento hacer con la marihuana, o si conoces algun especialista en España? te lo agradecemos desde nuestro corazón. Familia de España posdata: estoy usando traductor de Google.
Hello Hester, warm greetings and much admiration for the results you have achieved with your children. I have a 12-year-old autistic nephew named Mario, he is very aggressive towards his mother and sister, he constantly attacks them.
The family is desperate, and it got out of hand. The child is super medicated but there is no progress, on the contrary he regressed more. He does not speak well, does not hold his gaze, moves his arms, urinates in bed at night, is rude, breaks everything if they do not give him what he wants.
He has already sent the mother to the hospital a couple of times because of the blows he has given her. Could you help us and recommend what treatment to do with marijuana, or if you know any specialist in Spain? We thank you from our hearts. Family from Spain.
postscript: I am using google translate. Thank you….
Read full blog on Hopegrown.org